September 3, 2020
author
Mike McGregor - founder of Janesi Comfort
Patient age
31-50
Author age
31-50
Instagram/Facebook Handle

Bi-lateral profalactic mastectomy and hysterectomy - BRCA1 +

1st thing I wish I had known

Going through menopause prematurely is not a small side effect from the surgery. Having your body change so dramatically should be a serious consideration as to if prophylactic hysterectomy is a good fit for you at that point in your life. The body change, hot flashes, calcium issues etc are quality of life issues that need to be taken into account.

2nd thing I wish I had known

DIEP Flap reconstruction is worth the effort. When you are going through getting insurance to cover it (they will, it might just be a epic battle) and recovering from the stomach surgery (in our case) will feel nearly insurmountable at times. A year in after comparing our experience with friends who opted for traditional implants I think it was worth the effort. If you are in the tri-state area look up Dr. Greenspun who did an amazing job with Jolene or consider traveling to New Orleans to the originators of the procedure, they just saved a good friend of mine.

3rd thing I wish I had known (plus any bonus thoughts)

Another shameless plug here for Janesi but drains suck. I designed our upcoming drain-management robe specifically to fix a problem that I could not fix for Jolene while recovering from this procedure. Comfort and convenience matters in so many areas, this is definitely one.

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